ZanneEllaWayne Skydive1Zanne and Wayne successfully completed their parachute jump and Ella was there to lend her support to them on a beautiful sunny day.  Through generous donations, Savvy Financial Planning has contributed a total so far of almost £2,000 to help fund a clinical trial at Manchester Children’s Hospital.  We are planning on doing further fund raising for Ella and the MPS Society throughout 2013 and you can continue to make donations by either sending a cheque to us made payable to MPS Society, or follow this link directly to Ella’s website http://www.shareagift.com/pages/giftpage.aspx?giftid=1691

We also recently received an update from the MPS Society which stated that they were delighted to announce they have awarded the first grant of £160,000 to the University of Manchester to begin the first stage of the Genistein clinical trial this autumn.  This is fantastic news but there is still much to be achieved with the MPS and their members committed to fundraising the remaining £200,000 needed to continue the trial so that treatment can be made available to help Ella and other children with this disease.

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